|Wow! She really did grow too. She's even shoe-less in the last day picture. And the hair!!|
Amber clearly was not getting the nutrients she needs and that triggered a downward dysautonomia spiral by Sunday. She is delicately balanced in order to be functional, and Saturday put her over the edge. Her whole body was just wrong for a few days, however she's made great improvements over the week and is back to functional. She even fully participated in back to back PT and OT this afternoon!
|I replaced my 20 year old leaking blender so it's easier to make smoothies, and acquired a couple of books to help me feed Amber better.|
Despite extreme exhaustion and problems with her heart rate this week, Amber has kept up with her cardio exercise - even when she could only do 10 minutes on the recumbent bike. She pushed through to ensure she doesn't entirely de-condition. We did have to skip flute lesson this week though, since Amber's heart wasn't responding to the beta-blocker very well that day (or on Sunday) and her breathing was labored just walking around the house.
|Her last 8th Grade assignment, plus work throughout the week.|
Next week Amber starts her Summer school schedule: no more than 2 subjects per day. We also skip lessons on days when fun is to be had, for example her first day of Summer school will actually be a no lesson day since we have plans with friends. Hours recording for 9th grade begins on July 1st, with the official start being August 1st.
Goodbye middle school years - you were fun!
Happy Memorial Day Weekend!