Despite being a break Amber has earned quite a few art hours this week by working on various craft projects to help her relax without using the PS3. For some reason I had a real aversion to her playing video games this week. Maybe it was the exhaustion in her face. Normally, I'm not one to freak out about game time, especially during a break. We also kept up on current events with the CNN Student news. I didn't even have to remind Amber about it, she listens to it faithfully every day.
|(Left & Top-Middle) Ready for the King's Faire; Playing at the King's Faire|
(Bottom-Middle, Top-Right) Confirmation hayride and bonfire. It was cold!
(Bottom-right) Letting their light shine!
|(Left) Homeschool teen group outing to the corn maze and farm. That goat loved Amber. |
(Middle-top) After the corn maze. She felt awful, but said it was worth it.
(Middle-Bottom) A new cheesecake cookie that Amber loves.
(Right) Goofing off.
UPS delivered our new science curriculum on Wednesday and it looks better than I expected. Whew. Amber earned some science hours, even though it was break, by reading and working through a weather prediction book during a long drive and subsequent long wait for neuroscience testing. We then talked a lot about the barometric pressure and looked back at the weather data for the past couple of weeks. It turns out that Amber's Valsalva Maneuver results were not normal for the baroreflex. We are still learning about all of this, but it means that the weather barometric pressure will affect Amber's dysautonomia symptoms. That could explain why early October was so hard for her; the weather was very unstable, while this week it has been quite pleasant.
Amber also does not have complete Anhidrosis (inability to sweat), but much of her body does not sweat at all. There was really only one site that produced sweat during the test on Thursday. Unfortunately, the blood draw for AAG still did not happen, however it looks like the politics have been worked out... or forced aside by the doctor, and we won't be taking a trip to the Mayo Clinic. (Whew.. again). The delay seems to now be as simple as a needed lab employee, who has the details for drawing this particular test and shipping it to the research facility, was out on personal leave. We should, hopefully, be going in next week for the AAG anti-body blood draw.
|(Left) GI doctor; (Middle-Top) Allergiest. |
(Middle-bottom) Waiting at neuroscience and studying weather.
(Right) Testing at neuroscience
|(Left) On our way to a photo shoot at the orthodontist. Amber was selected to be part of their promo campaign.|
(Middle) Elsa hat! Thanks Keilee.
(Right) On her way to the homeschool Halloween party - Pinkie Pie!!!